B12 Deficiency Under Diagnosed

Dr. Joseph Chandy

Family doctor has huge impact on patient health

(taken from a local English paper)

In a crowded East Durham meeting room one patient after another was standing up to tell their story of how a simple course of vitamin injections had changed their lives.

First to speak was Betty Ritson, a patient of Dr. Chandy, a general practitioner who has found previously undiagnosed vitamin B12 deficiency in hundreds of people over the last 25 years.

According to the family doctor, vitamin B12 deficiency may affect up to 12 per cent of the UK population, and is massively under-diagnosed by NHS doctors.

Vitamin B12 plays a vital part in the manufacture of red blood cells and if the vitamin is lacking, the patient may go on to develop one or more of a number of conditions.

Dr. Chandy believes vitamin B12 deficiency must be suspected in all patients with unexplained neuro-psychiatric symptoms or unexplained anaemia.

The GP thinks many patients with B12 deficiency fall through the net because many symptoms are not recognised. These symptoms can range from severe depression to paralysis.

Several patients on Dr. Chandy’s books were diagnosed with multiple sclerosis, an incurable degenerative disease, but have responded well to B12 injections. Others who lost the sight of an eye or collapsed in the street or at home have also been diagnosed with vitamin deficiency and have benefited from the injections.

Dr. Chandy battles medical establishment

Dr. Chandy has battled for decades to persuade the medical establishment to listen to his views. He has developed a more modern way of diagnosing vitamin deficiency, which replaces an approach which dates back more than 150 years.

The slightly built 60-year-old doctor hopes to persuade Health Secretary Patricia Hewitt that the NHS should adopt his diagnostic approach and improve the health of thousands while saving billions in unnecessary diagnostic procedures and treatment.

A B12 test costs just three pounds, thirty-eight pence while a six-month course of injections costs twenty-eight pounds. (There are approximately two and a half dollars to a pound.)

Calling for a break from tradition

Betty Ritson, a feisty patient who was suffering from a range of chronic illnesses until she was diagnosed with vitamin B12 deficiency, said, “If it wasn’t for you, doctor, I wouldn’t be here at all, I would be fertilizing my own flowers.”

The Durham event was organised by Dr Chandy with the backing of The B12 Committee, a support group made up of former patients, to call for a revolutionary break with medical tradition.

Testimonials

Ian Marley, who had complained of a lack of energy and constant tiredness before being diagnosed as B12 deficient, climbed to his feet to blurt out: “I feel on top of the world, happy-go-lucky. I feel absolutely wonderful. So thank you.”

A woman called Jacqueline – rose to her feet. “I had dizzy spells, pins and needles and felt numb down one side. Eventually I keeled over in Peterlee town centre,” she said, adding that her hospital consultant suggested her problems were all in her mind.

But after being diagnosed with B12 deficiency and being given a course of monthly treatments, her problems disappeared. “I feel wonderful after my injections and I know when I need them because my concentration goes and I drop things,” she said.

Another of Dr Chandy’s patients – a woman called Rosemary – told her story, “I was diagnosed as a possible multiple sclerosis case. I used to fall over. I lost the vision in my left eye,” she said.

Like the other patients, she responded well to the B12 injections and was restored to health. “If I didn’t have the injections I wouldn’t be here. You are the best thing since sliced bread,” she said. The cheers and enthusiastic applause which greeted this comment showed the unusual bonds which exist between Dr Chandy and his patients.
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Since the early 1980s, when Dr Chandy first put his views on vitamin B12 deficiency into practice, around 750 patients at his East Durham practice have been given either B12 supplements or injections.

Until recently, NHS hospital specialists have taken a dim view of this maverick GP’s diagnostic approach. But after a review of Dr Chandy’s work, his novel approach to the diagnosis and treatment of B12 deficiency has been cautiously approved by Dr. Jonathan Wallace, consultant haematologist at Newcastle’s Freeman Hospital.

In addition, Dr. Chandy’s  ‘pathway of care’ was endorsed by Easington Primary Care Trust in July – although that organisation has been swallowed up by the new County Durham Primary Care Trust which was established last month.

B12 deficiency & illness vs good B12 levels

Dr. Chandy’s conviction that vitamin B12 deficiency could be the cause of many illnesses began when he was a young doctor in India, more than 40 years ago. He wondered whether there could be a link between the ill health of his Hindu patients and their vegetarianism, given that B12 is found in meat, liver, fish, eggs and milk.

But, it is also the case that many people lack the ability to absorb vitamin B12 from their diet, meaning the only way the deficiency can be redressed is by injections or sublingual supplements.

Dr. Chandy discovered that when he gave some of his Hindu patients B12 injections, in most cases their health improved.

All of this was on his mind when he moved to the UK and set up in practice in County Durham in 1970.

As a single-handed GP looking after more than 3,000 patients he didn’t have much spare time, but what time he had he devoted to researching the role played by vitamin B12 in maintaining good health and what might happen if a patient was deficient. He became convinced that the threshold of vitamin B12 deficiency used by NHS doctors to measure this condition was far too low.

B12 level information ~What is a healthy B12 level? ~ Read more.

It took him a decade before he was able to start treating UK patients. His first patient – a woman called Glenys – was in the audience on Monday. “I was in a terrible state, as weak as a kitten,” she said. “I was diagnosed with pernicious anemia. Since then I have been getting the injections for more than 20 years.”

Swallowing B12 tablets doesn’t work

Because of difficulties in getting permission from the NHS to continue with injections, Glenys was denied B12 injections for two years. “They tried tablets but they didn’t work. I needed the injections because I wasn’t taking the vitamins out of my food,” she said.

Her health declined during these two years but since the injections were resumed she says she has enjoyed good health. “I am 60 years old now and there is nothing wrong with me,” she said, proudly.

Many unable to extract B12 from food

Many people are unable to extract vitamin B12 from their food. Vitamin B12 is known to be essential to maintain a healthy nervous system and Dr Chandy suspects this is why a deficiency can cause inflammation of the nerves and dementia.

Dr Chandy’s remarkable story was featured in the BBC television documentary Inside Out.

Surreal results from having B12

Catherine Iceton, a 30-year-old mother from Peterlee, told how she was able to stop using a wheelchair and walk normally again, despite being diagnosed with MS, after a course of B12 injections. “It is surreal. I have to pinch myself. I have woken up from my nightmare,” she told cameras.

Another patient featured on the documentary, Jeannette Chapman, 36, from Peterlee, revealed how B12 injections helped her recover from severe depression and allowed her hair to grow back.

On the same BBC film, the Newcastle-based consultant haematologist Jonathan Wallace, who reviewed Dr Chandy’s methods, said it was possible the GP was right after all.

Dr. Chandy may well have the last laugh when his research is published in a leading journal in the near future.

More than anything, the veteran family doctor wants to be able to pass the burden on to other, younger doctors. “I am a tired old man. I can’t fight any longer,” Dr Chandy told his audience of admirers. “It is the truth. I love my patients, this is the reason I have done all this.”

6:01am Friday 3rd November 2006 From: The Northern Echo, United Kingdom www.thenorthernecho.co.uk/features/health/display.var.1001911.0.my_work_is_a_labour_of_love.php

In 2014 Dr. Chandy was banned from prescribing Vitamin B12 injections.

Months of public outcry and enthusiastic support from his many happy patients helped to lift the ban, but a higher medical authority (the General Medical Council) later banned him not only from offering vitamin B12 treatments, but from treating chronic fatigue syndrome in any way.

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Summary
B12 Deficiency Under Diagnosed
Article Name
B12 Deficiency Under Diagnosed
Description
Dr. Chandy knows that vitamin B12 deficiency should be suspected in all patients with unexplained neuro-psychiatric symptoms or unexplained anemia.
Author
Publisher Name
Health Boundaries
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